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Family Quality of Life: Challenges for research, practice, and policy

August 24, 2016, 9:00 am - 1:30 pm

$25.00 – $75.00

The Family Quality of Life of families with a member with a disability will be explored in a colloquium format, examining the current research in the field. Applications of learnings for policy, service provision, cross sector cooperation and family centred planning will be examined including the cross section of social inclusion and quality of life.


Roy Brown is a clinical and educational psychologist who has carried out hands-on teaching, research and practice in the field of intellectual and developmental disabilities. He has directed support and intervention programs in the UK, Canada and Australia across the life span including setting up programs for children and adults with educational and learning challenges. He has many years experience designing and developing research and professional education as well as degree programs in universities. Currently Professor Emeritus at the University of Calgary, Canada, and Flinders University, Australia he holds an Adjunct Professorship at the University of Victoria, Canada. Roy’s research and practice have resulted in over 200 hundred books, chapters and articles.

Roy was director of the longest Quality of life research project in Canada funded by Health and Welfare Canada. More recently he has been heavily involved in family quality of life research and application and has written extensively on the impact and needs of families, including older families where there is a person with a developmental disability. He is editor of the Adult Down series for the Down Syndrome Educational International (Formerly DSET). Roy has run and presented numerous international workshops for frontline personnel in the disability field. He believes in the application of quality of life at the cutting edge of practice involving people with disabilities, their families, and frontline professionals amongst others. Currently he is writing on the role that Quality of Life and Family Quality of Life data play in the scientific and professional fields and their relevant to policy and practice. He has chaired a range of agency boards and government scientific and review committees in Canada and Australia.

Roy has co- chaired the Quality of life Special Interest Research Group of the International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) which was followed by taking on the founding and volunteer directorship and chair of the IASSIDD Academy that provides workshops in a wide range of countries. He is currently the chair of Down syndrome Special Interest Research Group (IASSID), and more locally has become a member of Age Friendly Committee in the Sooke region, Canada. He has received awards from disability societies in Canada and South Australia and awarded the Order of the University of Calgary for his services to “the University and Canada, nationally and internationally”. He also received the degree of Doctor Honoris Causa from the University of Gent, Belgium, for “scientific contributions to Disability Studies”.

Meaghan Edwards is a PhD candidate and works as a Research Fellow with the CDS. She has a background in community based, applied research in disability and Family Quality of Life and Quality of Life.  She has received the University of Sydney World Scholars Award from the Sydney Medical School to support her post graduate studies on families, inclusion and social support. Prior to her current position, Meaghan was the supervisor of research at MukiBaum Treatment Centres in Toronto, Canada. In this position, Meaghan supervised students in the fields of psychology and social work from the University of Toronto and Guelph Humber University.

In Meaghan’s current role she lectures on the Diploma of Disability as well as post graduate disability courses and delivers Person Centred Active Support training. She has also acted as the coordinating member of a state expert team evaluating the National Disability Insurance Scheme and is a member of evaluation teams examining behavioural support programs, and large residential centre closures. She also supports the Social Networking Group for people both with and without intellectual disabilities around making and sustaining social connections, with a view to improving quality of life.


MFB Auditorium,Ground Floor 92-94 Parramatta Rd,  Camperdown, 2050


August 24, 2016
9:00 am - 1:30 pm
$25.00 – $75.00


Peta Hurst
02 9036 3600


The Auditorium, Ground Floor, Medical Foundation Building
92-94 Parramatta road
Camperdown, NSW 2050 Australia
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Who's Attending

7 people are attending Family Quality of Life: Challenges for research, practice, and policy

  • Laura Davy
  • Kathryn Knight
  • Jenny Tran
  • Christine Conolly


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