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Marie Knox

 

Marie’s work at CDS primarily involves the coordination, along with Professor Patricia O’Brien and Tanya Riches of the Inclusive Research Network, a network of people with and without intellectual disability who plan and carry out research. Marie’s particular interest and focus is on the critical role that people with disabilities themselves can play in planning and implementing research designs to explore topical issues of importance to them. She has also been a chief investigator on several ARC projects focusing on the well-being of people with disabilities. Her research has convinced her of the value of the learning from “lived experience”, and the critical and, perhaps, emancipatory role of research in the unsilencing of the voices of people with disabilities and other marginalised groups of people.

Marie rejoined CDS in 2010 after a lengthy period working at QUT in Brisbane, and has worked on a number of projects including:

  • The development and implementation of a framework for evaluating organisational person-centredness by people with intellectual disability: An Inclusive Research Approach
  • Keeping my place in the community: Achieving successful ageing-in-place for people with intellectual & developmental disabilities.
  • Evaluation of MINDA Demonstration project: Real Lives Real Places
Qualifications:

B.A. (Hons) Dip Ed PhD

 

Research:
  1. 2013 ARC Linkage Project Grant – Keeping my Place in the Community: Achieving Successful Ageing-in-place for People with Intellectual and Developmental Disabilities. With Professor Trevor Parmenter (University of Sydney), Professor Rafat Hussain (UNE) and Professor Matthew Janicki (UNE).

 

  1. 2008 ARC Discovery Project Grant - Realising an 'ordinary life' for people with intellectual disabilities: Developing a theoretical framework for group home outcomes. With Professor Christine Bigby (LaTrobe University). Professor Jim Mansell, Dr Julie Beadle-Brown (University of Kent, UK)

 

  1. 2006 ARC Discovery Project Grant– Moving Beyond Crisis Management: Creating a Future for People with Disabilities Living with Ageing Parents. With Professor T. Parmenter, Associate Professor R. Stancliffe, Dr M. Donelly (University of Sydney)

 

  1. 2004 ARC Linkage Project Grant – Developing an Integrative Active Ageing Model for Policy Makers and Service Providers to Support Older People with a Lifelong Intellectual Disability. With L Buys, G. Boulton-Lewis & H. Edwards (QUT) and C. Bigby (LaTrobe)

 

  1. 2013 IRT Research Foundation: Supporting Ageing-in-Place for people with and into disability: An exploration of rural and metropolitan perspectives with T. Parmenter (University of Sydney), R. Hussain (UNE), M. Janicki (University of Illinois, Chicago)

 

  1. 2013National Disability Policy and Research Working Group: “It’s Different in the Country” Supporting Ageing-in-Place for people with developmental disability: An exploration of rural and metropolitan perspectives with T. Parmenter (University of Sydney), R. Hussain (UNE), M. Janicki (University of Illinois, Chicago).
Publications:
  1. Bigby, C. & Knox, M. (2009) “I Want to See the Queen” - The Experiences of Service Use by Ageing People with an Intellectual Disability Australian Social Work 62, 216 – 231.

 

  1. Bigby, C., Knox, M., Beadle-Brown, J. & Bould, E. (2014). Identifying Good Group Homes: Qualitative Indicators using a Quality of Life Framework. Intellectual and Developmental Disabilities 52, 348-366.

 

  1. Bigby, C., Knox, M., Beadle-Brown, J., & Clement, T. (2014). We just call them people: Positive regard for people with severe intellectual disability who live in group homes Journal of Applied Research in Intellectual Disability 27, 283–295.

 

  1. Bigby, C., Knox, M., Beadle-Brown, J., Clement, T., and Mansell, J. (2012) Uncovering Dimensions of Culture in Underperforming Group Homes for People with Severe Intellectual Disabilities. Intellectual and Developmental Disabilities 50, 452-467.

 

  1. Buys, L., Gillian Boulton-Lewis, G., Jan Tedman-Jones, J., Edwards, H., Knox, M. & Bigby, C. (2008). Issues of active ageing: Perceptions of older people with lifelong intellectual disability Australasian Journal on Ageing 27, 67-71.

 

 

  1. Ellem, K., Wilson, J., Chiu, H.W. & Knox, M. (2008) Ethical principalism meets real life: life story research with ex-prisoners with intellectual disability. Disability & Society 23, 497-509.

 

  1. Knox, M. (2007) A Life Managed or a Life Lived? A Parental View on Case Management. In C. Bigby, C. Fyffe & E. Ozanne. Planning and support for people with intellectual disability. Issues for case managers and other practitioners. London: Jessica Kingsley

 

  1. Knox, M. & Bigby, C. (2007). Moving towards midlife are as negotiated family business: accounts of people with intellectual disabilities and their families. International Journal of Disability, Development and Education 54, 287-304.

 

 

  1. Knox, M. & Hickson, F. (2001). The Meanings of Close Friendship - The Views of Four People with an Intellectual Disability. Journal of Applied Research in Intellectual Disability. 14, 1-16.

 

  1. Knox, M., Mok, M. & Parmenter, T.R. (2000). Working with the Experts. Collaborative Research with People with an Intellectual Disability. Disability and Society, 15, 1-15.

 

  1. Knox, M., Parmenter, T.R., Atkinson, N. & Yazbeck, M. (2000). Family Control - The Views of Families who have a Child with a Disability. Journal of Applied Research in Intellectual Disability 13, 17-28.

 

  1. Lin, H.-C., Knox, M., & Barr, J. (2014). A grounded theory of living a life with a physical disability in Taiwan. Disability & Society, 29(6), 968-979.
  2. Munro, L., Knox, M. & Lowe, R. (2008) Exploring the Potential of Constructionist Therapy: Deaf Clients, Hearing Therapists and a Reflecting Team. The Journal of Deaf Studies and Deaf Education 13, 307-323.

 

  1. Strnadova, I., Cumming, T., Knox, M. & Parmenter, T. (2015). And Older women with disabilities, they have a future as well. Perspectives on Life, well-being and ageing by older women with intellectual disabilities. Journal of Intellectual and Developmental Disabilities)

 

  1. Strnadova, I., Cumming, T., Knox, M.& Parmenter, T. (2014). Building and Inclusive research team: The Importance of Team Building and Skills Training Journal of Applied Research in Intellectual Disability 27 13-22.

 

Teaching:

Marie also is involved in supervising several PhD students whose topics include:

  • Perceptions of family well-being of families which include a child with autism
  • Experiences of researchers with intellectual disability involved in inclusive research
  • Perceptions of community living held by people with intellectual disability living in mainland China

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