CDS and Fragile X Association Australia are thrilled to unveil our Survey for Adults & Ageing with Fragile X Syndrome. We invite family members and support teams to participate. Your input is invaluable! Closes 17 June.

Fragile X Care | Adults & Ageing is the first Australian study on the support needs, health & wellbeing of adults with Fragile X syndrome as they age. The study is supported by a philanthropic grant.

Our shared goal is ambitious – to enhance quality of life for adults with Fragile X syndrome as they age.

First of all, we need to gather information that will help us:
1.    Build a picture of the current and future needs of adults with Fragile X syndrome in Australia
2.    Understand any gaps in supports or services
3.    Create free online education resources for disability, aged care & health teams about Fragile X syndrome
4.   Advocate for policy and practice developments across relevant support and care settings.

INVITATION TO PARTICIPATE IN SURVEY OPEN UNTIL 17 JUNE 2024.

You can learn more about the surveys and participate below:

Click Here to Learn More about the Family Survey

Click Here to Learn More about the Support Staff Survey